CLICK ON THIS LINK for a Video about the need for increased blood donations from the African American community.

CLICK ON THIS LINK for a CDC podcast to learn the importance of blood donations from African Americans
to help people with SCD who might need one or more blood transfusions.


CLICK on the LINK below to read about The FDA
approves Crizanlizumab, First Targeted Therapy for Sickle Cell Crisis! 

December 2020

This is exciting news!  Scientists are getting closer to a CURE for Sickle Cell Disease!


Gene-editing treatment shows promise for sickle cell disease

Gene-editing treatment shows promise for sickle cell disease -

CBS 21 News contacted Dr. Gwendolyn Poles, SCPASCC Board President,
who lives with Sickle Cell Disease
and asked to do a follow up to the 60 minutes Report [above].


These Patients Had Sickle-Cell Disease.
Experimental Therapies Might Have Cured Them.

The National Heart, Lung, and Blood Institute
Wed, Oct 23, 2019

Subject: NIH/Gates Foundation Collaboration to Develop Accessible, Gene-Based Cures for Sickle Cell Disease and HIV
Today NIH and the Bill and Melinda Gates Foundation announced plans to investment at least $100 million each over the next four years toward an ambitious goal to develop affordable, gene-based cures for sickle cell disease (SCD) and HIV.  Because SCD and HIV disproportionately affect populations living in Africa or of African descent, the collaboration will focus on aligning research efforts to develop gene-based curative therapies that can be delivered safely, effectively and affordably anywhere around the world, including in low-resource settings. The collaboration sets a bold goal of advancing gene-based cures to clinical trials in the United States and relevant countries in sub-Saharan Africa within the next seven to 10 years. 

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