© 2018 South Central PA Sickle Cell Council

              created by The Partnership for Hope

2000 Linglestown Road, Suite 103, Harrisburg, PA 17110

Monday - Friday  8:00 AM - 5:00 PM

FindACure@scpascc.org

 

 Phone:  717-234-3358

 FAX:  717-234-1907

SICKLE CELL DISEASE in the NEWS!

CLICK on the LINK below to read about The FDA
approves Crizanlizumab, First Targeted Therapy for Sickle Cell Crisis! 
The National Heart, Lung, and Blood Institute
Wed, Oct 23, 2019

Subject: NIH/Gates Foundation Collaboration to Develop Accessible, Gene-Based Cures for Sickle Cell Disease and HIV
 
Today NIH and the Bill and Melinda Gates Foundation announced plans to investment at least $100 million each over the next four years toward an ambitious goal to develop affordable, gene-based cures for sickle cell disease (SCD) and HIV.  Because SCD and HIV disproportionately affect populations living in Africa or of African descent, the collaboration will focus on aligning research efforts to develop gene-based curative therapies that can be delivered safely, effectively and affordably anywhere around the world, including in low-resource settings. The collaboration sets a bold goal of advancing gene-based cures to clinical trials in the United States and relevant countries in sub-Saharan Africa within the next seven to 10 years. 

This is exciting news!  Scientists are getting closer to a CURE for Sickle Cell Disease!


On, March 10, 2019, there was a Report on 60 Minutes that you should watch. 
The facts and truths, so far, will lift your spirit and offer you the chance
to be hopeful about a CURE being on the horizon.

https://www.cbsnews.com/news/could-gene-therapy-cure-sickle-cell-anemia-60-minutes/

CBS 21 News contacted Dr. Gwendolyn Poles, SCPASCC Board President,
who lives with Sickle Cell Disease
and asked to do a follow up to the 60 minutes Report [above].  

https://local21news.com/news/local/possible-sickle-cell-disease-cure-discovered


ANOTHER VERY ENCOURAGING NEWS ARTICLE!  PLEASE READ IT! 

These Patients Had Sickle-Cell Disease.
Experimental Therapies Might Have Cured Them.

https://www.nytimes.com/2019/01/27/health/sickle-cell-gene-therapy.html

Dr. Doris Wethers, 91, on Front Lines Against Sickle Cell, Dies​
https://www.nytimes.com/2019/02/07/obituaries/dr-doris-wethers-on-front-lines-against-sickle-cell-dies-at-91.html
January 27, 2019 : The NY Times   
FYI…..Sickle Cell Disease Guidelines Release Set for Early 2019 | Hematology News
https://www.mdedge.com/hematologynews/article/190181/anemia/sickle-cell-disease-guidelines-release-set-early-2019