SUPPORT GROUPS are a great resource for people to maintain control over their lives, to give and take from wisdom and experience that comes from living with a devastating illness like Sickle Cell Disease. We offer support groups to help adult, and youth clients, their families, and caregivers develop tools to regain a sense of control over their lives.
Our support groups give participants the opportunity to meet and share information, while giving moral support to their peers. Our experienced and compassionate social worker facilitates and guides discussions. Presented in small-group settings she encourages questions and in-depth discussions.
Our Support Groups provide the following:
A forum to share information and practical experience, whether it is learning how to improve physical functions, discussing new drug treatments for pain management, or developing new coping skills; all are geared to helping you to live more fully with the disease.
A safe and welcoming environment to share your thoughts and feelings. The group offers a great opportunity to learn how other people cope with various problems similar to yours, to see that you are NOT alone, and that others experience the same/or similar type of feelings and emotions about the disease as you do.
An educational gathering spot where clients and caregivers who speak, address subjects of major interest and exchange ways of coping with depression, and caregiver “burnout,” among many other topics.
A place to witness firsthand, the miracle of people continuing to live happy, productive, fulfilling lives, in spite of having Sickle Cell Disease.
These Ongoing Support Groups are usually held every 4 to 5 weeks, Saturday 11 AM to 12:30 PM, in our conference room, or local community center.
“I Am Not Alone” - Adult Peer Support Group – Support for adult clients (ages 19+) dealing with SCD.
"Can You Hear Me Now?" – Youth Peer Support Group – Support for young clients (ages 12 to 18) dealing with SCD.
Teen -to- Adult Health Transition Program
“New Beginnings” for teens with SCD. This program is designed as a supplemental educational and support tool to help teens with SCD to successfully transition from pediatric to adult medical care.
Our Annual Programs For Clients and Families
Summer Camp – Ages 6 to16 Double H Hole in the Woods Ranch
Every year our families our encouraged to allow their children to attend the Double H Ranch summer camp, located at Lake Luzerne, NY. The Double H Ranch, co-founded by Charles R. Wood and Paul Newman, provides specialized programs and year-round support for children and their families dealing with life-threatening illnesses.
All children are under the watchful care of fully trained staff 24/7 – including doctors, nurses and camp counselors. A fully equipped med-clinic is on site with a general Hospital within 10 minutes of the camp.
Our children are transported to-and-from camp by our Executive Director and treated to 5 days of food and fun at no cost to our families.
Sickle Cell Family Day
A day of Food and Fun for Families! This is a social-recreational event held on a Saturday, near the end of summer, just before kids return to school, at a location chosen by the children in our program, by majority vote. In recent years, the Carlisle Sports Emporium has become a favorite choice of the kids. FREE for all participating Sickle Cell families! A day of Family, Food and Fun!
To learn more about any program, service, or group please call: (717) 234-3358, or Email: firstname.lastname@example.org