© 2018 South Central PA Sickle Cell Council

              created by The Partnership for Hope

2000 Linglestown Road, Suite 103, Harrisburg, PA 17110

Monday - Friday  8:00 AM - 5:00 PM

FindACure@scpascc.org

 

 Phone:  717-234-3358

 FAX:  717-234-1907

We are excited to COUNTDOWN the Days and Time until

the wonderful ExtraOrdinary Give Day is here!


Please Go To: 
https://www.extragive.org/organizations/sickle-cell-council

Use this Link to donate directly to Sickle Cell Council ONLY on
November 22nd at 12:00 AM until November 22nd at 11:59 PM

OUR VISION STATEMENT:  
“A Council Building Bridges within the Sickle Cell Community”
OUR MISSION: 
Providing support to Individuals, Families, and Caregivers,
in 26 PA Counties, who are affected by this life threatening, painful disease 
through advocacy, increased public awareness, intervention, and education.

2004 National

Stamp recognizing those impacted by
Sickle Cell Disease

Welcome to the Sickle Cell Council!

 

We love visitors and are eager for you to become better acquainted with our nonprofit and Sickle Cell Disease and Trait. 

What we do each day impacts the lives of people who live with this painful disease in the 26 PA Counties that we support. Various people contact the Sickle Cell Council (SCC) to ask for help for themselves, and/or, loved ones. After identifying people who are suffering silently, without the benefits of our services, we encourage them to start using our programs and services to make their lives easier. 

If you would like to show your support for our nonprofit with a tax-deductible donation, just click on the Donate button, above. Whether you give one dollar, one hundred dollars, or one thousand dollars, any amount that you donate will help us help people stricken with this painful, life threatening disease, Sickle Cell. 

Thank you for your heartfelt consideration to support our worthwhile cause! 

Joseph Robinson, Jr.,
Executive Director

This is exciting news!  
Scientists are getting closer to a CURE
for Sickle Cell Disease!

March 10, 2019:  A Report on CBS 60 Minutes that you should watch! The facts and truths, so far, will lift your spirit and offer you the chance to be hopeful about a CURE on the horizon.

https://www.cbsnews.com/news/could-gene-therapy-cure-sickle-cell-anemia-60-minutes/

 

CBS 21 News contacted
Dr. Gwendolyn Poles, SCPASCC Board President,
who lives with Sickle Cell Disease

March 11, 2019:  
For a follow up interview by CBS 21 News 


https://local21news.com/news/local/possible-sickle-cell-disease-cure-discovered?fbclid=IwAR36srgy3psi4v
PG3fjr_UPPDQpKBatnlGCmmM-E8iMkP6j2rjOmva88IwE

More Recent Gene Therapy Approaches
"These Patients Had Sickle Cell Disease,
Experimental Therapies Might have Cured them"

- by Gina Kolata 
Go to toolbar above: Click on:

FACTS then Click on: SCD In the News!
 

"Hope and Destiny - A Patient's and Parent's Guide
to Sickle Cell Disease and Sickle Cell Trait" 

by Allan F. Platt, Jr., PA-C & Alan Sacerdote, M.D.

BOOK RESOURCES

BOOK RESOURCES

 "Stranger Within"  - by Shirley Renee

SICKLE CELL ASSOCIATION of AMERICA, Inc's
Celebrity Champion, Markus Golden,
NFL Player, with the Arizona Cardinals
made a Public Service Announcement (PSA)
to increase awareness about Sickle Cell Disease
on World Sickle Cell Day! 

 

CLICK HERE FOR PSA
 

HERE IS THE LINK to the PA House of Representatives Video of our recent 2019
 ADVOCACY DAY, on May 7th.

https://www.youtube.com/watch?v=kZt3QoO3BBU&list=PLjtqNtfs0bgUZ1F-ILBbwZjYA4eUh3Ngc&index=1

The Sickle Cell Disease Council For Change Releases its first report: Improving Vaso-occlusive Crisis Management

 

The Sickle Cell Disease Council For CHANGE recently released its first report,
supported by Pfizer, which identifies issues and objectives to address
for improving the acute care of sickle cell disease. Click here to read the report.

The Council For Change is a group of leading experts, advocates, and patients in the United States who
are passionate about driving forward advances to improve management and acute care of SCD patients. 

The group, which consists of more than 20 members, recently published its first report, titled Improving Vaso-occlusive Crisis (VOC) Management. The report can be accessed here. Additionally, a useful backgrounder that gives an overview of the initiative can be found here.


 

Sickle Cell Disease Association of America | (410) 528-1555 |
scdaa@sicklecelldisease.org | http://sicklecelldisease.org

6/18/19 INTERVIEW - Joseph Robinson, Jr, Executive Director of South Central PA Sickle Cell Council - on Good Day PA the day before our celebration of World Sickle Cell Awareness Day on 6/19/19!

Click to OPEN INTERVIEW LINK

FOR MORE INFORMATION about UPCOMING EVENTS contact

Judy Chandler, Events Coordinator, at jchandler@scpascc.org or Call 717-234-3358

CHECK OUT 

THIS VIDEO

featuring 

SCPASCC,
our 
MISSION,
our 
CLIENTS
and 
our IMPACT!