The Extra Ordinary Give Day
brought in $770
for Sickle Cell Council!
Many thanks to ALL who participated!
OUR VISION STATEMENT:
“A Council Building Bridges within the Sickle Cell Community”
Providing support to Individuals, Families, and Caregivers,
in 26 PA Counties, who are affected by this life threatening, painful disease
through advocacy, increased public awareness, intervention, and education.
Stamp recognizing those impacted by
Sickle Cell Disease
Welcome to the Sickle Cell Council!
We love visitors and are eager for you to become better acquainted with our nonprofit and Sickle Cell Disease and Trait.
What we do each day impacts the lives of people who live with this painful disease in the 26 PA Counties that we support. Various people contact the Sickle Cell Council (SCC) to ask for help for themselves, and/or, loved ones. After identifying people who are suffering silently, without the benefits of our services, we encourage them to start using our programs and services to make their lives easier.
If you would like to show your support for our nonprofit with a tax-deductible donation, just click on the Donate button, above. Whether you give one dollar, one hundred dollars, or one thousand dollars, any amount that you donate will help us help people stricken with this painful, life threatening disease, Sickle Cell.
Thank you for your heartfelt consideration to support our worthwhile cause!
Joseph Robinson, Jr.,
This is exciting news!
Scientists are getting closer to a CURE
for Sickle Cell Disease!
March 10, 2019: A Report on CBS 60 Minutes that you should watch! The facts and truths, so far, will lift your spirit and offer you the chance to be hopeful about a CURE on the horizon.
CBS 21 News contacted
Dr. Gwendolyn Poles, SCPASCC Board President,
who lives with Sickle Cell Disease
March 11, 2019: For a follow up interview by CBS 21 News
More Recent Gene Therapy Approaches
"These Patients Had Sickle Cell Disease,
Experimental Therapies Might have Cured them"
- by Gina Kolata
Go to toolbar above: Click on:
FACTS then Click on: SCD In the News!
"Hope and Destiny - A Patient's and Parent's Guide
to Sickle Cell Disease and Sickle Cell Trait"
by Allan F. Platt, Jr., PA-C & Alan Sacerdote, M.D.
"Stranger Within" - by Shirley Renee
SICKLE CELL ASSOCIATION of AMERICA, Inc's
Celebrity Champion, Markus Golden,
NFL Player, with the Arizona Cardinals
made a Public Service Announcement (PSA)
to increase awareness about Sickle Cell Disease
on World Sickle Cell Day!
HERE IS THE LINK to the PA House of Representatives Video of our recent 2019
ADVOCACY DAY, on May 7th.
The Sickle Cell Disease Council For Change Releases its first report: Improving Vaso-occlusive Crisis Management
The Sickle Cell Disease Council For CHANGE recently released its first report,
supported by Pfizer, which identifies issues and objectives to address
for improving the acute care of sickle cell disease. Click here to read the report.
The Council For Change is a group of leading experts, advocates, and patients in the United States who
are passionate about driving forward advances to improve management and acute care of SCD patients.
The group, which consists of more than 20 members, recently published its first report, titled Improving Vaso-occlusive Crisis (VOC) Management. The report can be accessed here. Additionally, a useful backgrounder that gives an overview of the initiative can be found here.