Sickle Cell Disease: How to Be an Advocate for Change
Photo via Pexels Sickle cell disease (SCD) is a group of inherited blood disorders that affect millions of people worldwide. Despite its...
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Dwayne Golden
- May 25
- 2 min
Tips for Managing Pain During a Sickle Cell Crisis
Photo via pexels Sickle cell disease is a genetic disorder that affects the red blood cells, causing them to become misshapen and sticky....
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Dwayne Golden
- Apr 30
- 2 min
The Latest Breakthroughs and How They are Improving Patient Outcomes
Innovative Treatments and Therapies for Sickle Cell Disease Sickle cell disease (SCD) is a genetic blood disorder that affects millions...
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Dwayne Golden
- Apr 2
- 3 min
Why Ignorance Is Not Bliss
Learn about the disparity in attention given to sickle cell disease compared to other illnesses, leading to mistreatment and stigma.
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Dwayne Golden
- Mar 20
- 2 min
Overcoming SCD Obstacles and Achieving Greatnes
Sickle cell disease (SCD) is a genetic blood disorder that affects millions of people around the world. It is often associated with...
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Dwayne Golden
- Mar 14
- 2 min
Blood Type and Ethnicity Why They Matter for Sickle Cell Disease Patients
Sickle cell disease (SCD) is a genetic blood disorder that affects millions of people worldwide. It is caused by a mutation in the gene...
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SCPA Sickle Cell Council
- Dec 5, 2020
- 1 min
Gene-editing treatment shows promise for sickle cell disease
December 2020 This is exciting news! Scientists are getting closer to a CURE for Sickle Cell Disease! Gene-editing treatment shows...
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SCPA Sickle Cell Council
- Nov 29, 2020
- 1 min
Blood Donations Needed Among African Americans
CLICK ON THIS LINK for a Video about the need for increased blood donations from the African American community....
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SCPA Sickle Cell Council
- Nov 29, 2020
- 1 min
Sickle Cell Disease: Give Blood, Save a Life
CLICK ON THIS LINK for a CDC podcast to learn the importance of blood donations from African Americans to help people with SCD who might...
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dgolden91
- Nov 29, 2020
- 1 min
These Patients Had Sickle-Cell Disease. Experimental Therapies Might Have Cured Them.
ANOTHER VERY ENCOURAGING NEWS ARTICLE! PLEASE READ IT! These Patients Had Sickle-Cell Disease. Experimental Therapies Might Have Cured...
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SCPA Sickle Cell Council
- Nov 15, 2020
- 1 min
US approves new drug to manage sickle cell disease
CLICK on the LINK below to read about The FDA approves Crizanlizumab, First Targeted Therapy for Sickle Cell Crisis!...
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SCPA Sickle Cell Council
- Oct 23, 2019
- 1 min
The National Heart, Lung, and Blood Institute
Wed, Oct 23, 2019 Subject: NIH/Gates Foundation Collaboration to Develop Accessible, Gene-Based Cures for Sickle Cell Disease and HIV...
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SCPA Sickle Cell Council
- Mar 11, 2019
- 1 min
Possible Sickle Cell Disease Cure Discovered
CBS 21 News contacted Dr. Gwendolyn Poles, SCPASCC Board President, who lives with Sickle Cell Disease and asked to do a follow up to the...
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