Living with sickle cell disease or caring for someone who does can sometimes feel isolating. Yet, there is a powerful way to connect,...

This blog focuses on the current available FDA-approved medications, promising therapies in clinical trials, and important questions patients should ask their doctors. It recognizes National Sickle Cell Awareness Month, showcasing the vital work of SCPASCC, advocating for education, community support, and access to care. Through compassionate guidance and practical insight, the post encourages readers to stay informed, get involved, and support lasting change in the sickle ce

Grassroots advocacy gives the sickle cell community strength and hope. This post shares how small acts of support like attending events, giving blood, or standing with a family, grow into powerful change. From awareness walks and press conferences to community blood drives, groups like SCPASCC show that everyone has a role to play in making voices heard and lives better.

A visual timeline depicting the journey of a young child through different stages of life, from infancy to teenage years, highlighting...

“Excess heat, dehydration, and thickened blood are serious risks for people with sickle cell disease. Staying cool, drinking water, and...

A family discussing their health plan and reviewing an approval form with the help of a clinic nurse and staff member. Why This Matters...

Making sure you are covered for healthcare and prepared for any financial management for when necessary. Health insurance is supposed to...

Living with sickle cell disease brings a level of pain that many cannot imagine. These pain episodes, or crises, can come out of nowhere...

Mental health matters for everyone Living with sickle cell disease means facing stress that most people never see. Pain episodes can come...

Understanding your health insurance paperwork is a key step in getting the care and support you need while living with sickle cell...

Teen and Caregiver Together in Waiting Room Accepting and Making Changes Getting older with sickle cell disease brings new challenges....

Young men in this gentle yoga session show how wellness can be accomplished without strenuous exercise. Chronic fatigue is a frequent...

It's very important for a person with sickle cell to remain hydrated as much as possible. Why Food and Water Matter for Sickle Cell...

It's very important to keep hydrated during the summer heat. For most people, summer means sunshine, vacations, and long days outside....

Medical personnel deliver care to a newborn, showcasing the attentive monitoring and support crucial for the infant's health and...

Sickle cell crisis, a painful condition associated with sickle cell disease. Living with sickle cell disease means knowing that a pain...

South Central PA Sickle Cell Council executive director, Ms. Carla Johnson at a community event, promoting screening and awareness for...

Hydroxyurea capsules are used in medical treatments for sickle cell patients. Managing sickle cell disease is hard work. There are good...

In the US, 1 in 13 African Americans and 1 in 100 Latinos have trait, not to mention - 1 in 333 whites born have the trait as well.

Join us for National Sickle Cell Month! Learn about our events, the importance of awareness, and how you can support the SCD community.