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Privacy Policy


Welcome to the Sickle Cell Council Website ("Website," "Site," "We," "Us," or "Our"). This Privacy Policy outlines the types of personal information we may collect, how we use it, and the measures we take to protect your privacy.

Information We Collect

1. Personal Information


When you visit our Website, we may collect personal information such as your name, email address, phone number, and other relevant details when you fill out forms or register on our site.

2. Non-Personal Information


We may also collect non-personal information about your device, including your IP address, browser type, and the pages you visit on our Website.

How We Use Your Information


We may use the information we collect for the following purposes:

  • To respond to your inquiries or requests.

  • To improve our Website and services.

  • To send periodic newsletters or updates.

  • For research and analysis.


Our Website may use "cookies" to enhance user experience. You can choose to set your browser to refuse cookies or to alert you when cookies are being sent.

Third-Party Links

Our Website may contain links to other sites. We are not responsible for the privacy practices of these third-party sites. We encourage users to read the privacy policies of any site they visit.



We implement a variety of security measures to protect your personal information. However, no online transmission can be guaranteed to be 100% secure.


Children's Privacy

Our Website is not intended for use by children under the age of 13. We do not knowingly collect personal information from children under 13.

Changes to This Privacy Policy


We reserve the right to update or change our Privacy Policy at any time. We will notify users of any changes by posting the updated policy on this page.


Your Rights


Depending on your jurisdiction, you may have certain rights regarding your personal information, including the right to access, correct, or delete your data.


Contact Us


If you have any questions or concerns about this Privacy Policy, please contact us at 717-234-3358.

By using this Website, you acknowledge that you have read and understood this Privacy Policy.

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